埃拉·斯坦貝克
慢性病/醫療夏爾巴人
點擊“聯繫方式”進行約會。
我現在將我的經驗和“Rolodex”提供給那些尋求它的人。這旨在用作諮詢。這絕不是醫療建議。我不是醫生。我只是一個病了很長時間的人。也許我的所有問題都可以幫助您！
我知道浪費寶貴的時間、精力和資金試圖在一個壓倒性的系統中尋找合適的幫助是什麼感覺。我只能提供我的經驗和聯繫方式。我還有一個“禮物”，可以給那些拒絕我們獲得護理或以其他方式讓我們失望的人寫尖刻的信件——如果你需要幫助的話（我不是律師！但有時需要寫信才能得到我們的幫助）沮喪、被理解或其他一些原因……我也在 Instagram 上發布了許多這樣的信件）。
名額有限，因為我沒有太多精力。我希望我能做得更多！我道歉。
我不要錢！我要求您向一個非營利組織捐款，該非營利組織使患有萊姆病/EDS/慢性疼痛/慢性病等的人受益。如果您願意，您可以向一個有助於結束販賣兒童/剝削兒童的基金會捐款。 如果你需要想法，我可以發送一份合適的基金會清單。您的捐款收據將作為“付款證明”。您選擇的基金會的付款屏幕截圖或確認電子郵件就足夠了。我建議每 45 分鐘的電話諮詢貢獻 60 美元或更多。我一次只能安排 45 分鐘。我知道生病很貴，而且錢很緊。做你覺得舒服的事情，做你認為對我來說“公平”的事情。
我強烈鼓勵並要求您抽出時間閱讀我的 與萊姆 (Lyme) 和埃勒斯·丹洛斯 (Ehlers Danlos) 一起生活的片段。並且還請收聽我參加的播客 - 在我們見面約會之前。這樣您就可以充分了解我可以提供的服務和我的病史。你可以做筆記和問題清單。
當你聯繫我預約時，我會發送鏈接。在您閱讀/聆聽之後，我們可以騰出時間給您打電話。
我的 Instagram 也充滿了免費信息。我是一本打開的書。
確診：
古典類 Ehlers-Danlos 綜合徵 TNXB基因 (hEDS), 花盆， 萊姆 疾病，收斂 不足，創傷 腦損傷 和 3 腦震盪，我 是 在 維甲酸 3次， 創傷後應激障礙， 高度警惕， 焦慮， 恐慌， 沮喪， 間質性膀胱炎， 子宮內膜異位症， 肥大細胞 激活綜合症， 多種的 化工 敏感性障礙， Aniscoria，慢性 疲勞 綜合症
#心理健康意識 #勺子 #隱形殘疾
“ 如果什麼都沒有改變，什麼都不會改變”
作家，1% 的前髮型師，製片人，倡導者，在泰國教新手僧侶英語，FRAME 基金會的董事會成員......我還做過一些生活指導、建模、表演和站立 - up Comic-ing 過去。
一世 相信人類應該有更多的人性。
沙發上的生活......如果你患有慢性病，把它與好運和厄運混合在一起......你會得到我！
Writer, Ex-hairstylist to the 1%, Producer, Advocate, Taught English to Novice Monks in Thailand, Board Member for FRAME Foundation...I've also been known to do a little Life Coaching, Modeling, Acting, and Stand-up Comic-ing in the past.
I believe there should be more humanity in humans.
Living Life On The Couch. If you take chronic illness, mix it with good luck and then some bad luck. you'll get ME!
I am now offering my experience and "Rolodex" to those who seek it. This is meant to be used as a consultation. This is in NO WAY medical advice. I am NOT a doctor. I am simply someone who has been sick for a VERY long time. Maybe everything that is wrong with me can help you!
I know what it is like to waste valuable time, energy, and finances trying to navigate an overwhelming system to find the right help. I can only offer my experience and contacts. I also have a "gift" for writing pointed letters to those who have denied us access to care or otherwise medically disappointed us- if you need help with that (I'm not a lawyer!
BUT sometimes letters need to be written to get our frustration out, be understood, or some other reason..l post many of those letters on Instagram as well).
Appointments are limited because I don't have a lot of energy. I wish I could do more! I apologize.
I do not want money! I ask that you make a donation to a non-profit that benefits those who suffer from Lyme/EDS/chronic pain/chronic illness etc. Helping people helping people if you will... If you prefer, you can donate to a foundation that helps fight to end child
trafficking/exploitation. If you need ideas, I can send a list of appropriate foundations. Your donation receipt will be "proof of payment". A screen shot of payment, or a confir email, from your chosen foundation will suffice. I contributing $60 or more per 45 minutes of phone consultation. I can only schedule 45 minutes at a time. I know being sick is expensive and money is tight. Do what is comfortable for you and what you deem "fair".
I strongly encourage and request that you make time to read my pieces/articles on living with Lyme and Ehlers Danlos.
Please also listen to the podcasts I have participated in - BEFORE we meet for an appointment. That way you have a full understanding of what I can offer and my medical history.
You can make notes and a list of a questions. Or if you don't need anything after reading/listening/watching give me a shout out to let me know if anything was helpful to you.
When you contact me for an appointment I will send the links. After you have read/listened we can make a time for me to call you.
My Instagram is full of free information. I am an open book.
Diagnosed:
Classical-Like Type Ehlers-Danlos Syndrome TNXB Gene (hEDS), POTS, Arthritis, Fibromylagia, Lyme Disease, Bartonella, Convergence Insufficiency, Traumatic Brain Injury and 3 concussions, I've been on Accutane 3 times, CPTSD, Hypervigilence, Anxiety, Panic, Depression, Interstitial cystitis, Endometriosis, Adenomyosis, Mast cell Activation Syndrome, Multiple Chemical Sensitivity Disorder, Aniscoria, Chronic Fatigue Syndrome
#mentalhealthawareness #spoonie #invisibledisability
"Nothing changes if NOTHING changes"
有趣的圖片-請“顯示更多”以獲取更多信息！
Directed by Rose Troche
DIrected by Daniel Arsham
Daniel Arsham
DIrected by Martin Scorsese
